To find and accelerate cures for cancers and other diseases by fostering and rewarding a community of collaboration and innovation. We seek to spread awareness, expedite research and kinder treatments, and improve the quality of life for patients and their families.
THE POWER OF DATA
We believe we can find a cure for cancer in our lifetime. To that end we have helped develop a large scale database that houses molecular, genetic, clinical and environmental data on pediatric brain tumors.
COLLABORATION IS CRUCIAL
We reward qualified researchers and institutions who share data with the database by giving them free access to the database, leveraging existing grant funding, and creating new grants through fundraising efforts.
In order to innovate cancer research, we need to seek input from a wide variety of places. To that end, we support open data projects that share data with the world - not just a select group of hospitals. Access to the data should be available to everyone.
Children's Brain Tumor Tissue Consortium
Progress and Milestones
Dragon Master Foundation launched with the goal of building a large-scale cancer research database.
President Amanda Haddock won the White House Champion of Change Award for Precision Medicine
Participated in Aligning Incentives for Sharing Clinical Trial Data at the New England Journal of Medicine.
Served on panel at Learning from Patient Experience: New Frontiers in Patient-Partnered Research at The Broad Institute of MIT and Harvard.
Participated in launch of the NIH Gabriella Miller Kids Program Data Resource Center.
Provided funding funding for the first ever clinical trial to share data in real time.
Spoke at Inaugural Childhood Cancer Data Initiative Meeting.
Served on planning committee and moderated a panel for Cancer Moonshot™ Symposium on Personal Control of Genomic Data for Research
Funded expanded access for patients to stay on life-extending drug, ONC201
Partnered with the Children's Brain Tumor Tissue Consortium for large-scale cancer research platform.
Participated in the Cancer Moonshot Summit in Washington, D.C.
Funded open-data project, Cavatica.org, launched for world-wide usage.
Participated in Biden Cancer Initiative Summit.
Gave guidance as part of the NCI's National Cancer Advisory Board Working Group on Data Science.
Featured in an article in the International Brain Tumor Allicance's annual magazine.