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Symposium on Personal Control of Genomic Data for Research


Our President Amanda Haddock, moderated a session at the NCI Symposium on Personal Control is Genomic Data and Research. Day 2 is today and we will get to hear from fellow Kansan Jace Ward about his experiences as a patient trying to get information. We are thankful to the NCI leadership for giving the patient community such a strong presence at this symposium. If you are interested, today will be broadcast and there’s a lot being tweeted using #NCIParticipantShareData19 Check out the Facebook post here.

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